a good death: “the kind most people would choose”

Nino Sekopet, an extraordinary end-of-life counsellor, on the questions he most often faces

from the article the tweet links to:

A Dutch actress with terminal cancer came to see Sekopet, along with her son. She was unflinchingly realistic and decided that in order to avoid lots of “bulls–t,” she wanted to end her life with VSED. Their conversation was almost buoyant with laughter, simply because that’s where that family was. “That’s a very light, almost funny, cheerful death that’s stayed with me,” Sekopet says.

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lightly edited copy from DWD Canada:

  • It is legal to end your own life in Canada and has been since suicide was removed from the Criminal Code in 1972
  • You have the right to refuse any and all treatment, even if refusal might hasten your death
  • You have the right to stop treatment after it has started. Ethically and legally, there is no distinction between discontinuing treatment and refusing it in the first place
  • In Canada, nutrition and hydration by tube is considered medical treatment. You have the right to refuse or stop it
  • You also have the right to turn down food or drink and the right to refuse to be fed or given drinks by others
  • The above is referred to as Voluntary Stopping of Eating and Drinking (VSED) and is supported by many palliative care providers

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Be sure to choose palliative care that includes informed use of glycerin swabs to relieve thirst, and so on. With no fluid intake you are likely to lose consciousness in a week or so and – without intervention – never regain it. Please read this Guardian piece: 'It was a good death, the kind most people would choose' (Sophie Mackenzie on why her family backed her mother's decision to stop eating and drinking when faced with terminal cancer).

from this page on the DWD Canada website:

Document your wishes. When it comes to end-of-life decisions, what you've put in writing will carry more weight than something you've mentioned in passing. Clear, written instructions will also make it easier for your substitute decision-maker to act on your wishes. So write them down! You can use the forms in our Advance Care Planning Kit or have a lawyer or notary draw up your documents. It's up to you.

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